Welcome to Gil's guestbook 2001!Name: Jamie Hometown: Albuquerque, NM Sent: 6.36 PM - 12/1 Gil I have just read part of your web page and plan to visit it many times in the future as my PKD progresses. Your sense of humor even in the hard times you have faced is very refreshing and reassuring to me. I send you my best wishes for the success of your new kidney. Jamie Name: Greg Beers Hometown: Shirley Massachusetts Sent: 4.34 PM - 11/30 Hi Gil, you are truly a courageous man with all that you have been through. I also have PKD. My father died when he was 45. My brother and one of my two sister has it also. I am the youngest at 39 but am the first to get end stage. I have about 13% of my function left and have to start dialysis soon. I decided on hemo because of my size (6'3" 210Lbs) and I also get a lot of bloody cyst episodes which can cause infection for PD. I am getting a fistular next week. I'm scared as hell knowing what I will have to go through in my future. Reading your sight has eased some of the fears and created new ones. I used to be a very active person who loves to ski and hike and mountain bike. I still do what I can but the energy level has dropped significantly. I hope I can still do the active things I like to do while on hemo. I'm also very anxious to get a transplant but the wait is 4-5 years here in New England. Thanks for all of the information you compiled for your sight. Good luck and God speed. Name: Nancy Hometown: Central Valley, Calif. Sent: 1.55 PM - 11/30 Gil, I just read your website and I'm glad to hear that your third transplant kidney is going strong! I have been a kidney patient (diagnosed with Lupus in 1975 at age 15) most of my life and I had almost 25 great years not having to worry much about it until now. I just started PD in October and it seems to be working for me. So far so good. I enjoyed hearing your experiences and I can really related to all of the questions and thoughts that go through your head when problems occur (usually at night or on weekends!) Good luck to you and thanks for sharing your stories. Nancy Name: Narelle Hometown: Melbourne, Australia Sent: 7.23 PM - 11/23 Hi Gil, I have really enjoyed looking through your website, it has been a great learning experience for me. Hope your transplant is successful for you! All the best. Name: Melissa Williams Hometown: Galeton Pennslyvania Sent: 7.23 PM - 11/20 Found your site.I think its great.I was on dialysis for 3 yrs.Had my kidney transplant 2 yrs ago..Only 1 rejection episode and that was 4 weeks ago.Take care of yourself everyone.Gil congrats on your thrid blessing.God Bless Melissa Name: Kathy Zimmerman Hometown: Oxford, MI Sent: 10.44 PM - 11/15 Hi there Gil, I miss your presence here at work, most of all, the insight you have provided me, over the years, on most any subject, of importance. May the presence of the Velveteen Rabbit's new found freedom, always be with you. All my best - Kathy Name: jill caryn bond Hometown: N.C. Sent: 5.56 PM - 10/29 I've been on hemodialysis since 1996 but have just recently been hooked up to the internet. I've so much to say, share and hopefully help by answering questions that I can't wait to get going. Through my searching I stumbled on your web site and briefly read a few entries. One that caught my eye was on the subject of drinking while on the machine. This is an ongoing battle at my clinic - Fresinious - and even though I and many others have demonstrated both sides of the effects when allowed and not allowed to sip something during the 4+ hours of Tx we still get threatened by the staff that Tx will be terminated and possible revoking our ability to dialize at that center. Thankfully I have a wonderful tech who encourages that I continue to sip on something - it is the only thing that has worked to keep me from crashing, getting sick to my stomach, cramping, and being drained of energy for the next two days. I am 43 years old, 5'6" and weigh in at a whopping 85 lbs. I am extreamly careful with my diet and fluid and usually only bring in 1/2 - 1lb in between Txs. I will spend more time at your site and get more involved with everyone soon. For now I just wanted to introduce myself and join the group. Sinserely, Jill Name: Koen van Gils Sent: 3.03 PM - 10/22 Name: Cathy Homepage: http://members.home.net/vanderwyst/PKD.html Hometown: Alberta, Canada Sent: 10.32 PM - 10/18 Hey Gil.......I missed you today. Was just in to see if you wrote in your diary and YOU DID...:-) I am glad to see that and I am glad that you are still dry.........I am keeping my fingers crossed for you. You are doing a wonderful job of accounting the details of your transplant.......(I'm keeping a diary too and hope to do a page soon) I sure wish I had of had this information to read before transplant......you will help a lot of people. Keep up the awesome work.....your friend.....Cathy Name: Barbara Garfield Hometown: Stony Brook, NY 1179 Sent: 1.13 AM - 10/12 What an amazing story. I an truly happy for you. I had my transplant back in 2/96 and was out of the hospital in 5 days. I have always had good luck with this kidney. Just had an eight day stay at the hospital for hypertension, however, kidney is doing great job. Creatinine is .7. I really enjoyed reading your story. Wishing you the very best of luck and good health. Name: Jamie Sent: 9.14 PM - 10/11 My mom was just told that she will be going on dialysis (Peritoneal) after over 10 years of fighting kidney disease. She is still young, so am I. I was searching the net to get more info on patients on dialysis when I stumbled on your web page. I am glad that I did because I have to say, you have been through a alot and you still have such a positive attitude! My mom is pretty strong about it all too, but I on the other hand am really scared. Best wishes to you and your family! Name: Hans Hometown: The Hague - Netherlands Sent: 6.13 AM - 9/30 Gil, Thank you for writing your daily story of your third transplant. I think this will help me to be patient when I have my transplant (approx june 2002). I have also read your dialysis tips, and will do so again when I have to start dialysis, the way I feel now indicates that that maybe soon. Very good information. I wish you good luck, I will be checking your page for updates. Hans Name: Darlene M. Caban Hometown: Chicopee, MA Sent: 7.55 PM - 9/27 Just read about your third transplant... you've been through it all! Best of luck with it, but I think you know what you're doing! (Too bad that sometimes the doctors don't!) Name: Diane Yendik Hometown: Naperville, Illinois Sent: 1.00 PM - 9/10 Hi Gil, Finally had time to sit down and read your home page all the way through. I keep praying you get the 3rd transplant soon. If not already. I am forwarding your home page to my dialysis nurse and the dialysis on-line. It is a great reference. Thanks for sharing all your experiences with us. Take care. Name: Robert Becker Hometown: Hershey Pa 17033 Sent: 2.39 PM - 9/1 Hi Gil My days on Pd were just like yours. I am so happy to find someone with the same experience. I am now back on hemo and doing better except for my low blood pressure. I am glad we found your web page with so much info. Good luck on your 3rd transplant. We will keep reading your web page for new info. Thank you Name: Randy Daniels Hometown: Orlando, FL Sent: 11.23 AM - 8/30 I am an ex-dialysis nurse with a sister who has been recently diagnosed. Dialysis has not yet been started and we are still in the workup stage. Hopefully, I can be her donor, if necessary. Thanks for the info from a patient's prespective and best of luck to you. Don't bother trying to send a response - we have a Gateway which also needs a transplant. Name: Rocha Sent: 11.49 PM - 8/26 Thanks for having this home page it helps alot, my sister is getting on dialysis and she is afraid, and honestly so am I, she is my only sister. Name: Maja Hometown: Skopje Sent: 12.11 PM - 8/24 SO happy that I find you on the internet. I was so lonely. MAJA Name: Janet Sent: 1.34 AM - 8/21 Hello Gil, I was so impressed by your web page.. You and my mother should write a book and I guarantee that it could be a best seller... You are both sheer genuises-- I am a nurse and NEVER understood the mechanics of fluids as YOU have taught me on tonight.. My mother encountered ESRD as a result of hypertension and diabetes and did PD WITHOUT ONE SINGLE BOUT OF PEROTONITIS, I MIGHT ADD, for 5 years and then my oldest sister gave her a kidney. Talk about stress in the waiting room... The hugs,kisses and tears that were experienced as they each went in separate directions were inexpressible.. My mother just found out that the kidney rejected after 5 years and she is about to start hemodialysis in the a.m... She is not " up to PD anymore" She has expressed vehement ambivalence about even initiating hemo but after a VERY ILL weekend she consented. her biggest reason was the fluid restriction! She is hospitalized as we speak and though she had planned and psyched herself to get a Permacath today, she was bumped and surgery was delayed by 7 hours and she ended up with Udall cath in the jugular for now. I have perused the hemo sites and stumbled upon your comments which led me to your site. It is neither, mistake,nor,coincidence that you have been chosen to endure ESRD and become a source of strength and resource for millions of sufferers. As I read the web site messages, I became very despondent at what my mother is soon to face tomorrow, but I came to your advice for 1st time HD pts and it blessed my heart. I will share it with her tomorrow..I want to also thank you for the gift of articulation and inhibition regarding the innermost feelings and emotions associated with the " ordeals of ESRD" that most Americans are not able to tap into, and unfortunately are masked by psychotropic drugs, antideppressants, alcohol, etc. Your " cathartic" sessions have inevitably given you the ability to remove the emotional toxins that render so many helpless and defeated.. I wil continue to lift you up in prayer knowing that Jehovah Jirah will provide and Jehovah Rafa will heal.. Until you say " completed" Isaiah 40: 31 But they that wait upon the lord, shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint.. Run on Gil... I need to clarify a statement also. I am in NO WAY inferring that those who need pharmaceutical assistance should be denied.. Just the opposite!! I speak to the MD's who fail to RECOGNIZE that the psychological impact and physical pains of ESRD are REAL entities and should be addressed and evaluated as vigorously as UF numbers... Name: Cherry Silva Hometown: Crest (in San Diego County) C A Sent: 1.18 AM - 8/17 Your web pages are fascinating reading. I happened upon them from your link on the dialysis group. By the way, I agree with you about drinking fluid while on the machine. Nearly every one in my unit drinks while on the machine and I have been bringing 22 to 28 oz of coffee or tea for my session every time for nearly two years. I recently came to the same conclusion about the extra fluid improving my clearances because my numbers improved after I started bringing in my coffee or tea. Name: MCS Hometown: So. St. Paul, MN Sent: 11.49 AM - 8/9 Hi Gil, Boy I thought I had it bad with the transplant I had last Aig 16. I also have Systemic Lupus Erythmatosous(spelling??).SLE. The drs didn't think the minor activity I had due to the SLE would be a problem. My brother's fiance was my donor. What a gal! I started showing progress right after the kidney was placed and after 5 days in the hosp I got to go home. YEAH!!! Then started the regimen of PILLS and MORE PILLS!! The a.m. was the worst time to take those pills. I usually never eat breakfast, now I HAD to take these pills every a.m. And the clinic visits were the worst. The RNs tell you to bring something to occupy your time as you can sit and wait for a couple of hrs once you are there! The Fri after I was sent home back to the hosp to have a tube put in my hip to drain excess fluid from around my new kidney. That Sun we were back in the hosp with a fever of 101. I had developed a blood clot in my leg and 'that' was draining into the bag on my hip. The surgeon had an ultra sound done to find the clot, didn't see one. They had to go back in and look around. It could have been alot worse that it was, the dr said the kidney and the tube saved my life more than likely. The clot was in my thigh(mid-ways down) and the dr didn't dare try to break it free. They put me on massive doses of HEPARIN removed the damaged kidney and I was left with this gaping "hole" in my stomach. Then started the torrent of RNs that would visit me every day for 6 weeks. Some should learn better hygiene I think. Most times I had to physically watch them wash their hands before they could touch me. At the time we had 2 cats and 1 was constantly shedding it seemed and I was concerned about infection. Well I was right to be concerned, I wound up with a STAPH infection. Had to have a pic line placed in my arm. What FUN!!! The type of staph I had would only respond to 2 types of antibiotics. The dr had me on VANCOMYCIN. YUCK! I had to have blood drawn 2-3 times a wk for various types of tests. After 4-5 wks of therapy I had the line removed from my arm and had to see the dr about an abundance of fluid coming from my wound. I had tunneling going on under the skin that was already healed. I was put on a machine called a Wound VAC(vacuum assisted closure). It also helped that the drs started weaning me off the massive doses of Prednisone I was currently on. I was on 80 mg for 3 months while all this other stuff was going on. I get the feel for what you've been through. Kinda been there myself, just not to the extreme you have. All I can do now is wish you well in your search for a new kidney and Good Luck. Feel free to email me with an update on your progress. Sincerely, MCS P.S. I am currently looking into Peritoneal Dialysis. Am having serious nerve problems with my access. I have a big nerve(ULNAR?) sitting on top of the fistula. The drs don't know what to do. My neph suggested we try PD. Name: Ron Hometown: Cincinnati Sent: 2.58 PM - 7/20 Thanks for the information. Trying to make a decision about my 75 year old father. Any input on whether someone who is diabetic, blind, and about to undergo his 2nd operation for a catheter in the neck after failure of a shunt in the arm is appreciated. Name: K. Joy Kemper Hometown: Lancaster, California "Near where the space shuttle lands" Sent: 2.12 PM - 7/20 Wow! I read almost all of your entries. What a story! I admire the diary format. Name: Rhonda Stephenson Hometown: Henryetta, OK Sent: 11.44 PM - 7/18 Known about my PKD for 2yrs. Just trying to learn all I can about the prognosis of the disease. I pray your transplant goes well. Name: Terry Hometown: Reading, ENGLAND Sent: 4.14 PM - 7/18 Wow! what a story! I just wish that i had kept a diary of my last 19 years on dilysis.Though not quite as traumatic as yours, plenty of minor disasters and funny stories to tell. I have been a home patient ever since my kidneys first packed up in 1982.My mum and i had a 6 week crash course at the local hospital and then set me up with a machine at home in my bedroom. Those first few weeks dialysing at home on our own with no nurse present was very daunting i can tell you.Even after 19 years dialysing at home it can still be lonely being a kidney patiet as you never get to see any other patients except when i go for my 3 monthly checkups at the hospital. The biggest breakthrough as far as i am concerned was the arrival of EPO. Like you i was in the first batch of patients to use it in the UK and i hav'nt looked back since. I went from a HG of 4 to 11.5 and from having pale cheeks (on my face ) to having healthy pink cheeks. Anyway its great to read about somebody elses experience and say " i know exactly what you are talking about" Good luck with no.3 Name: heidi(earthmom) Hometown: sidney, bc, canada Sent: 2.37 AM - 7/17 Hi Gil! I just read your tips for those of us who are newly diagnosed and found it very helpful. I printed it out and am going to hang it where I can see it all the time!(I hope that's okay?). Thanks again, Earthmom on the pkd message board. Name: Daiken Fiore Hometown: Alta Loma, California Sent: 6.04 PM - 7/16 Greetings Gil, I am glad you posted your web site again. I really enjoyed reviewing it. The best of luck to you on your 3rd transplant. You are a great role model for me. Take Care, Daiken Name: Patty(tweety) Homepage: http://crazy4tweety.tripod.com/ Hometown: chesapeake virginia Sent: 5.22 PM - 7/16 Hello Gil love your web page. You are always so knowlegeable on the pkd board and your web page will sure help millions I know you have answered many of questions I had. Thank you for sharing with us all your information you have been a great teacher to all. hugs and blessings patty Name: Jeannie Hometown: Elm Mott, Texas Sent: 3.06 PM - 7/15 Thx Gil for a trully inspiring story. I havve e-mailed you before but now I have re-found your site and have it bookmarked. I am still very new to this and info is my only way. I must know everything I can to make decisions for the future. You have been very informative for me. Thx again and bless you for the future. Jean Name: Jackie Sent: 6.04 AM - 7/15 Hello, I have read some of the material from your web site. Very good. Thank you. I am a new dialysis nurse RN, I am finding the information very helpful in learning about dialysis. If you have any tips especially for health care professionals I would appreciate being able to read them. I am not finished going through the material in your site, so maybe I will find some information written specifically for health care professionals already there? Thank you for your story. Jackie Name: paula Sent: 3.34 PM - 6/19 Your web site is very inspiring. It goes to show you, where there's a will there's away. Keep your chin up Name: Kelli Hometown: Amarillo, Texas Sent: 5.01 PM - 5/20 I was diagnosed with renal failure in September of 1997. My sister volunteered to give me one of her kidneys and on November 3, 1998 I had a kidney transplant. I was on Cyclosporine, Imuran and Prednisone. I did well for the first six months or so until the Prednisone "turned" on me. I became suicidal and was unpleaseant to be around. I was always "puffy" and I just felt bad in general. My doctor lowered the Prednisone dose but it still wasn't enough. He tried several drugs to try and save it but nothing worked. I finally told him that I didn't want him to try anymore. The anti-rejection drugs were hard on me and it just wasn't worth it. I have chosen not to try for another transplant. I feel much better being on dialysis. People think I'm crazy to want to be a slave to a dialysis machine three days a week but if it means feeling good then it's worth it. It just goes to show you that everyone is different and not everything works for everybody. Name: Barbara Adkins Hometown: Gibraltar, Michigan Sent: 9.28 AM - 5/20 Gil, Thank you very much for sharing your knowledge, with us. Name: Susan Harrison Hometown: Stratford, CT Sent: 8.49 PM - 5/19 I read your tale of the PD experience and you are a very strong man. My mother was on hemodialysis for seven years, and died of complications of diabetes and renal failure. She suffered unnecessarily at the end. I started PD this past December, after thinking about dialysis for the last 23 years, when I found out that I had FSGS, having had proteinuria since 1969. I am very happy that ultimately I chose PD. I thought about both options for a long time, and even was being worked up for hemo last year, but chickened out and after a visit to the PD unit and a talk with some of the nurses, decided on PD. I am 58 and have tiny veins, which make hemo more difficult for access. Who knows what might happen in the future, as one day I too might need hemo, if my peritoneum fails. Till then, I will do my best to remain as stable as possible with this dialysis. I am very comfortable with it so far and am using a cycler, the latest model by Baxter, which has a computer card that registers all the data and which is downloaded at the unit once a month when I come in for bloodwork and to see my doctor. Your story is a true inspiration to all who have renal disease and who feel threatened and intimidated because of the possibility of needing dialysis. I hope that all of us can go on and on as you have. God bless. Name: Lisa Daigle Hometown: Laporte, Colorado. Sent: 7.11 PM - 4/27 I am an RN working on a renal unit., I have PKD and come from a long line of PKDer's. I am 44 years old. So far, I am ok. Just Monopril for elevated BP. Your story was amazing. Love to your wife!!!!! Name: MARY JO KIRKLAND Hometown: WEST PALM BEACH, FL Sent: 4.14 PM - 4/14 HI GIL, I'VE BEEN SEEING YOUR NAME EVERYWHERE IN MY SEARCH. I MET A GIRL NAMED DIANE IN CHICAGO THAT I'VE BEEN CONVERSING WITH. SHE TOO, LIKE ME IS A MEDICAL TECHNOLOGIST AND UNDERSTANDS EVERYTHING THAT IS GOING ON WITH US. OF COURSE WHE HAS ALREADY HAD ONE TRANSPLANT AND I HAVEN'T EVEN STARTED DIALYSIS YET. WE ARE HOPING FOR A TRANSPLANT INSTEAD. I'M GOING FOR MY FIRST INTERVIEW MAY 1ST AT THE UNIVERSITY OF MIAMI. I HOPE ALL WORKS OUT FINE. IF YOU HAVE ANY WORDS OF WISDOM OR ENCOURAGEMENT FOR ME IT WOULD BE APPRECIATED. THANKS FOR ALL THE INFO. MARY JO Name: Nora Hometown: Kitchener, Ontario, Canada Sent: 7.54 AM - 3/18 I can't tell you how much I enjoyed the historical (and hysterical!) account of your kidney dialysis and transplant experiences! Finally someone who agrees with me that a good sense of humour is needed to "lighten the heavy load". I have found that most of the medical staff I've dealt with to be somber and melancholy all the time, and seemed annoyed with me anytime I tried to be the least bit jovial during all those millions of visits and operations. I had a live-donor kidney transplant in September of 1999 (my lovely sister). I did the PD thing first (oh, the book I could write about THAT experience - it almost killed me due to the negligence of the surgeon who installed the abdomenal catheter). Then I "enjoyed" the hemo dialysis for a year. This only happened after a shunt was attached to my jugular and my arm was sliced open 4 times before my fistula finally took. It's now been 18 months since my transplant, and my biggest problem has been the communication between me (the patient who doesn't matter)and the transplant clinic staff (the Gods of the Universe who make millions of serious mistakes and never own up to any of them). As someone who has "run the gamit" like me, I would love to communicate with you through email to help me with some serious questions. I am at a point right now where I am actually considering ignoring my doctor's advice and doing what I feel is best. If you wouldn't mind, I would like to email you and tell what has been going on so far and what decisions I need to make. I'm almost positive you've probably dealt with the same issues, and I would love to hear your opinion. Please email me and let me know if you would be willing to offer me your knowledge. Thank you for reading this posting - and thank you for your honest and inspiring story. I genuinely hope to hear from you very soon. God bless you. Nora Name: Lavelle Ray Hometown: Columbus, Ohio Sent: 9.43 PM - 2/27 Gil, Thank you for your hope, strength, and experience. I received a transplant in June 1996, and I need to hear from the real winners in life like yourself. Much Love!!! Name: joanneluton Hometown: england Sent: 4.53 PM - 2/20 I am wanting to hear from anyone who has received a transplant from a spouse especially if the family concerned have child/ren. I am a 32 year old woman who has been on peritoneal dialysis for two years now.The hospital say due to the scarse number of organs available in this country we should consider living unrelated transplant. I worry about the risks because my daughter is only 7. jo Name: Kathy Morvig Hometown: Fertile, MN Sent: 6.19 PM - 2/19 Hi Gil, Thanks for all the info. I haven't had a chance to read it all but am looking forward to it. I'm Katie75 on the Kidney Failure Board. I really appreciate your advice and info. It's great to put a face with the name. Stay in touch! Name: Yendik Sent: 10.53 PM - 2/17 Hi Gil. I am so happy you wrote this Web Page. It is definitely something everyone on the message board should read. I am going to use your web site for the dialysis patients at my unit. We all need to know there are others like ourselves. No one goes through more than dialysis patients. Cancer patients have to die but most of the time when they are in remission they do pretty well. Kidney patients survive but with so much anxiety, needles and doctors - how do we do it? We need to be there for each other. Take care Gil. "Yendiik" Name: David Smith (Bugs47 - WebMD) Hometown: Ridgeley, WV Sent: 5.05 PM - 2/16 Gil, Thanks for sharing what you have been through. I was told in 1992 I had RD. I have learned more from you and the webmd site than from the Dr.'s. I'm sure it was not that way for you because there was no internet someone could get on and find help as to what they might be facing. I read a lot on the webmd site message board but don't post much because I am still learning. I like your PD section because it sounds like what I would be like, and that would make me feel better to say just how I feel because I know you did. You know because I don't want anyone to think I'm not trying to get better, but sometime it is hard to say that treatment is not for me, or that it would be better on the family if I did it this way or that. So you see you give a lot of people strenth that they would not have if not for your help. Thanks from the bottom of my heart and I will continue to visit your site to read what is here now and what you add. Best Health David Smith Name: p.killingsworth r.n. Hometown: birmingham,al.usa Sent: 5.59 AM - 2/16 i,m a med-surg nurse looking into dialysis.my unit is diabetes/pulmonary,so lots of dialysis pts.trying to get a better understanding of the process to better help/moniter my pts.very imformative&thanks for encouraging folks to know their meds.plk Name: Stacy Hometown: Detroit Sent: 12.07 AM - 2/10 I am 29 and on my 2nd transplant. My kidney's failed when I was 13. My first translpant was from a cadaver, unfortunately it only lasted my 5 years. My second came from my wonderful cousing and it will 4 on April 23, 2001. It is going great. I really enjoyed your website. Best of luck to you. Name: Pat Peraza Hometown: Anaheim, CA Sent: 4.55 AM - 2/9 Thanks so much for all the information and heart you have put into your site. For the past few years, my mom has been living with the prospect of eventually needing dialysis and this past week it finally became a reality. Understandibly she's frightened. I'm hoping she come to terms with it and get at least part of her life back. Only time will tell. Thanks for all the inspiration and hope reflected in these pages. Continued health and happiness to you! Name: GERALDINE Hometown: DURHAM, NC Sent: 7.10 AM - 2/3 I HAVE BEEN ON HEMODIALYSIS FOR SIX YEARS AND ON THE TRANSPLANT LIST FOR FOUR YEARS. I REALLY ENJOYED YOUR WEBSITE. IT WAS VERY INFORMATIVE. THANKS FOR SHARING YOUR EXPERIENCES. Name: Teri & Richard Hometown: Alberta, Canada Sent: 9.57 PM - 1/28 So glad you are still around in 2001 to inspire us all. Enjoyed your new page and found it very informative, as is your whole site. We wish you better health, long life, and a successful transplant. All the best to your wife, also-she has been down a long road. Thank you for all your encouragment, information and help. ~Teri & Richard Name: Cathy Homepage: http://members.home.net/vanderwyst/PKD.html Hometown: Alberta, Canada Sent: 5.25 PM - 1/28 Hi Dad!! Your new chapter is unbelievable. You talk about all the different things that you have experienced, the drugs you have taken and what they did, everything!! It is very educational but yet makes one smile at your unbelievable attitude and sense of humor! You will help so many people by sharing this information Gil. A great job.....thank you! Cathy! Name: Elizabeth Hometown: Hanover, Massachusetts Sent: 11.45 PM - 1/23 Hi Gil, I have been reading your postings on the different bulletin boards and they have been very helpful. My mum will soon be a dialysis patient and we are hopeful for a transplant in the near future. I haven't finished exploring this site yet but I have bookmarked it. Thank you for all of the information you provide. You story is an inspiration. Many Thanks and God Bless. Name: Christine Hometown: Manchester, nh Sent: 1.15 PM - 1/9 Dear Gil - this is a very interesting site. I'm a hemodialysis nurse at the moment, and will shortly also be training to teach PD . My roommate (male aged 41) is planning on switching to PD after 14 mos. on hemo. We're trying to gather all the stories on experiences that we can, not just for his info, but also as a aid to my teaching.I'll be bringing your site to the attention of a group of PD nurses who are meeting next week. Thanks for the additional resource. Best luck and take good care . |